%0 Journal Article %T Awareness of Self and Disease Assessment: Development and Validation of a Subjective Measure in People with Alzheimer’s Disease %+ Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 (SCALab) %+ Laboratoire de Psychologie des Pays de la Loire (LPPL) %+ Institut Universitaire de France (IUF) %+ Centre Hospitalier de Tourcoing %A Mayelle, Amandine %A El Haj, Mohamad %A Antoine, Pascal %< avec comité de lecture %@ 1387-2877 %J Journal of Alzheimer's Disease %I IOS Press %V 71 %N 3 %P 841-850 %8 2019-10-01 %D 2019 %R 10.3233/JAD-190371 %K Alzheimer’s disease %K Anosognosia %K Awareness %K Self %K Self-assessment %Z Humanities and Social Sciences/Psychology %Z Life Sciences [q-bio]/Human health and pathology/Geriatry and gerontologyJournal articles %X Background: People with Alzheimer's disease (PwAD) remain able to speak coherently about their daily life for a long time, and their level of awareness could be determined through their discourse. In a grounded-theory approach, awareness of self and awareness of disease are intertwined and can be observed through three domains: mechanisms, objects and modes of expression.Objective: Based on preliminary results, in this article, we present the ASDA (Awareness of Self and Disease Assessment), a new subjective measurement tool for awareness in PwAD. To consider its use in research and practice, we initially performed validation analyses, including internal consistency, test-retest reliability and interrater reliability analyses.Methods: The new assessment tool consists of a semi-structured interview and ratings of 22 items divided into three categories. As part of our observational study, we assessed a sample of 28 PwAD who participated in four interviews (one every two weeks).Results: The ASDA shows good homogeneity within the domains of awareness and a certain degree of stability between two measurement times and between investigators. Missing values in the results provided information regarding awareness levels within and across the subjects.Conclusion: The results suggest that awareness could be assessed through subjective experience without reference to a comparison. %G English %L hal-03342829 %U https://nantes-universite.hal.science/hal-03342829 %~ SHS %~ UNIV-NANTES %~ CNRS %~ UNIV-ANGERS %~ SCALAB %~ UNIV-LILLE %~ LPPL %~ NANTES-UNIVERSITE %~ UNIV-NANTES-AV2022